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Other Publications/Resources

Aging with a Developmental Disability: Unmet Health and Social Services Needs
From the 25th Annual Spring Research Symposium, University of Manitoba Centre on Aging: discusses the lack of information and understanding of the needs of those aging with a developmental disability in Canada.  Currently services are designed either for older adults, or for those with developmental disabilities, not in combination. Research being conducted by Dr. Shooshtari seeks to increase this understanding, to inform the development and design of health and social services for those aging with a developmental disability.  Click here for Dr. Shoostari’s PowerPoint

Best Interests of Adults with Intellectual Disabilities: Are There Adequate Legal Safeguards?

Explores the laws and regulations which apply to persons with intellectual disabilities in the proovince of Ontario with specific attention to the issues of consent and substitute decision-making.

Clinical Bulletin of the Developmental Disabilities Division Vol 19-Nos 1 & 2 Spring/Summer 2008

Basic Medical Surveillance Essentials (U.K.)

Adapted draft recommendations of the U.K. Down’s Syndrome Medical Interest Group; this document identifies particular medical problems associated with Down Syndrome and summarizes treatments.

Click to link to adapted draft recommendations of the U.K. Down's Syndrome Medical Interest Group

Canadian Centre for Activity and Aging

The mission of Canadian Centre for Activity and Aging is to develop, encourage and promote an active, healthy lifestyle for Canadian adults that will enhance the dignity of the aging process.

http://www.uwo.ca/actage/

Canadian Consensus Guidelines on the Primary Care of Adults with Developmental Disability

Practical Canadian guidelines for primary health care providers for addressing health issues in adults with a Developmental Disability.

http://www.cfpc.ca/cfp/2006/Nov/_pdf/vol52-nov-cme-sullivan.pdf

Canadian Study of Health and Aging
The Canadian Study of Health and Aging (CSHA) was planned in 1989 as a national longitudinal study to provide accurate statistics on the number of people who have dementia, including Alzheimer's disease, in Canada. The study also covers a range of other health topics.
http://www.csha.ca/r_study_results.asp

Care for the Caregiver – A Manual for Implementing Workshops
This Manual was originally prepared by Mount Saint Vincent University's Nova Scotia Centre on Aging for Veterans Affairs in 1993 and revised in 2002; to enable wide distribution of this excellent resource, Veterans Affairs Canada slightly modified the Manual for the

Internet.

http://www.vac-acc.gc.ca/providers/sub.cfm?source=caregivrmanual

Concept Paper on Issues Concerning Seniors with Disabilities – Canadian Centre on Disability Studies

This concept paper was prepared to inform development of a report to the Office of Disability Issues (ODI) on advancing inclusion of seniors with disabilities.

Click to link to Concept Paper

Cross-Cultural Awareness in an Aging Society: Effective Strategies for Communications and Caring

This resource book for practitioners, educators and students covers multicultural political developments in Canada, a demographic profile by culture, information on religious and cultural celebrations and customs, cross cultural interpretation and models to support understanding.  A complete table of contents and ordering information is available.

http://www.socsci.mcmaster.ca/gerontology/aging_publications.cfm

Dementia in Older Adults with Intellectual Disabilities

A report on the state of science on dementia in older adults with intellectual disabilities by the IASSID Special Interest Research Group on Ageing and Intellectual Disabiliites.

Click to link to IASSID Report

Discussion Paper on Seniors with Disabilities - Canadian Centre on Disability Studies

This discussion paper was prepared to inform development of a report to the Office of Disability Issues (ODI) on advancing inclusion of seniors with disabilities.

Click to link to Discussion Paper

Ethical Choices in Long Term Care – World Health Organization

This paper prepared by the World Health Organization of the United Nations discusses the ethical issues that need to be addressed in developing long term care supports that are responsible, accessible, efficient and accountable and that address the universe of human needs with dignity and respect. 

Click to link to Ethical Choices in Long Term Care

Gains Rate Table

The purpose of the Gains Rate Tables is to provide a ready reference of OAS/GIS/GAINS payments at specific levels of private income, depending on a senior's status e.g. single or couple. 

http://www.rev.gov.on.ca/en/notices/itrp/1934.html

In Unison
This Canadian Vision paper sets out a blueprint for promoting the integration of persons with disabilities in Canada.
http://socialunion.gc.ca/pwd/unison/unison_e.html

Linking System Design to System Performance

This paper provides a systems design perspective on building healthcare delivery systems; it is being used by Local Health Integration Networks in Ontario as a resource document for planning; a useful discussion for anyone interested in the evolving Ontario health care planning system and general systems design and management.

Click here for the Paper Linking System Design to System Performance

Living and Aging with a Developmental Disability: Perspectives of Individuals, Family Members and Service Providers, Salvatori et al

A paper that presents findings from three pilot studies in two Ontario urban centres.  Implications for policy, service delivery and future research are discussed.

Click here for the Paper

Long Term Care Home Access Protocol for Adults with Developmental Disabilities

Ministry of Community & Social Services and Ministry of Health developed the protocol to promote cross-sector planning, service partnerships and learning.

Click here for the Long Term Care Protocol

Ministry of Community and Social Services Consultation Paper - Opportunities and Action - Transforming Supports in Ontario for people with a Developmental Disability.

Mobility Study - Physical Mobility and Aging in Intellectual Disability

Draft Report from Queen's University and SEOCURA written in accessible language describes findings about how older adults with intellectual disabilities get around. It finds that older people with intellectual disabilities generally have a harder time getting around than older adults.

Click here for the Mobility Study

Montreal Declaration on Intellectual Disabilities

Adopted at the Montreal Pan-American Health Organization and the World Health Organization Conference on Intellectual Disability in 2004.  The declaration establishes: legal standards pertaining to the right to equality of persons with intellectual disabilities; and measures to support decision making among persons with intellectual disabilities.

Click here for the Montreal Declaration on Intellectual Disabilities (pdf)

National Framework on Aging
The National Framework on Aging (NFA) developed in 1994, has as its core, a shared Vision Statement and five Principles that seniors and governments across Canada endorse.
http://www.phac-aspc.gc.ca/seniors-aines/publications/pro/healthy-sante/nfa-cnv/nfa-cnv1-eng.php

Older Adults with Intellectual Disabilities in South Eastern Ontario (Report)

Report of the South Eastern Ontario Community-University Research Alliance in Intellectual Disabilities (SEOCURA in ID)

Click here to see the report

Ontario Seniors' Secretariat

The Ontario Seniors' Secretariat influences and supports policy development across all government activities on behalf of Ontario's seniors.  It conducts specific policy acitivities with a multi-ministry focus aimed at improving the lives of Ontario seniors.  It works with other ministries and other levels of government to identify areas where policy development and coordination can result in improved services for seniors.  The secretariat identifies issues and trends among Ontario seniors' population through research data, demographic projections and regular dialogue with key seniors' groups.

http://www.culture.gov.on.ca/seniors/english/index.shtml

People with Severe Communication Problems:  Pain or Distress?

A discussion paper that explores body-language and the capacity of caregivers to interpret its meaning.  The authors find that communication is more difficult when a person has difficulty expressing their choices and struggles to understand information.  Distress may show itself in many ways - as silence or a reduction in activity.  These may be wrongly interpreted as someone being quiet and content.  Distress may show up as an increase in activity.  This may be misinterpreted as a challenging behaviour.

People with severe communication problems.pdf

PRISMA: A new model of Integrated Service Delivery for the Frail Older People in Canada

Prisma is a innovative co-ordination-type Integrated Service Delivery System developed to improve continuity and increase the efficacy and efficiency of services, especially for older and disabled population.

http://www.prisma-qc.ca/documents/document/Articleintegratedcare.pdf

Resources for Caregivers

A list of resources offering help to caregivers of people with dementia.  Click here for more information

Strengthening Home and Community Care Across Canada: A Collaborative Strategy – Report to the Annual Premier’s Conference August 2002
http://www.hlthss.gov.nt.ca/content/publications/reports/homecare/ProvincialTerritorialHomeCareReport2002Eng.pdf

The General Practice Care of People with Intellectual Disabilities: Barriers and Solutions (Australia)

This research paper reports on barriers to health care for people with intellectual disability in Australia; recommendations are presented for a range of strategies to overcome these barriers.

Click to link to General Practice Care of People with Intellectual Disabilities

The Standard Rules on the Equalization of Opportunities for Persons with Disabilities
These standards were adopted by the U.N. General Assembly in 1993; they provide a moral and political commitment of Governments to take action to attain equalization of opportunities for persons with disabilities. The rules serve as an instrument for policy-making and as a basis for technical and economic cooperation.
http://www.un.org/esa/socdev/enable/dissre00.htm

 

© OPADD 2007